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Frances Mary D'Andrea's avatar

I've been reading your blog since Hanif Kureishi mentioned you in one of his posts while you were still in the hospital. I have found your essays to be incredibly moving, instructive (as in, I've learned a lot), thoughtful, and deeply meaningful. Your stories have made me infuriated on your behalf numerous times, but have also led me to cheering your victories — even the ones you said were small. At the time I started following you, I was going through my own health issues and could commiserate with frustrations related to medical situations; more than that, since my entire career has been related to working with people with disabilities, you have had me thinking deeply about society's attitudes towards "able bodies vs. disabled bodies."

Your last few posts have moved me to happy tears. You write so beautifully about where you've been and where you are now in thinking about how your life has changed so dramatically. It's rare to read such honesty and clarity about acquiring a severe disability like this. Your own wonderful intellect and gifts of expression have provided me with so much to think about and share with my students and I thank you. I am more appreciative than you know.

Felice's avatar

This reminds me that I meant to comment on the post w/the Gauguin hypothetical, but didn't want to get into the weeds of free will with a philosopher, lol. But I'm very much of a mind that temperaments and dispositions, too, are accidents of fate; and so the choices we make are downstream of that randomness. A more-circumspect version of you may have made the right judgment calls that fateful day in Scotland, but he may also have deprived himself of some truly awesome experiences prior to that out of caution. Who/what decided how inherently risk-taking and adventure-seeking you'd be?

Similarly, who/what decided that you'd have the temperament to lean in to getting the kind of academic tutelage that helped you flourish? Sure, we build our own characters and make our own decisions to no small extent, and we owe it to ourselves to shore up various "deficiencies", but a lot of how we are (cognitively, emotionally) is handed to us, not unlike talent for painting or philosophy, no? (I should also note that I think some of this is cultural; I come from a "don't impose on people" culture, which in some unfortunate default ways translates to "don't ask for help".)

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